search
sickle cell disease
Trends
- 1Only 3% of US sickle cell patients get red blood cell exchange●Only 3% of US sickle cell patients receive red blood cell exchange for disease, researchers find https://www.theguardian
New research reported by the Guardian finds that just 3% of sickle cell disease patients in the United States receive red blood cell exchange, a transfusion treatment that can reduce complications of the condition. The finding points to a large gap between available therapy and actual care for a disease that predominantly affects Black Americans, prompting discussion about barriers to access and treatment guidelines.
- 2Gene therapy and health equity highlighted during Sickle Cell Awareness Month●Gene therapy & health equity in Sickle Cell Awareness Month
September marks Sickle Cell Awareness Month, and coverage in Atlanta is focusing on newly approved gene therapies for sickle cell disease and the question of who will be able to access them. Discussion centres on whether high treatment costs, insurance gaps and access barriers could widen health inequities for the predominantly Black patients affected by the disease.