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Clinical trial data exposed in academic database breaches

Original: Clinical trial data including genetic and medical history information has been exposed in academic research database bre

Breaches of academic research databases have exposed clinical trial data, including genetic and medical history information, affecting thousands of trial participants. Privacy advocates are urging people to exercise their HIPAA rights by requesting their medical records and an accounting of disclosures, and correcting any errors. The incident has renewed concerns about how universities and research institutions safeguard sensitive participant data.

Why now: People are alarmed by the exposure of sensitive genetic and health data and are sharing advice on HIPAA remedies.

academic research databasesclinical trial participants

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Evidence

• Clinical trial data including genetic and medical history information has been exposed in academic research database breaches affecting thousands of participants. So what: under HIPAA you can get your medical records and a list of who they went to. Request both, and correct… · indigoprivacy · 3

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