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Mmastodon HealthHealth first seen 8 h ago, last 8 h ago, peak #5

US baby with rare heterotaxy syndrome defies the odds

Original: US infant defies bleak odds from rare congenital trait: 'Don't quit before your child quits' https://www.theguardian.com

An infant in Louisiana is reported to have survived against bleak odds after being born with heterotaxy syndrome, a rare congenital condition affecting the arrangement of organs. The family's message, 'Don't quit before your child quits', is being shared as an inspiration, drawing attention to the condition and to families caring for children with rare diagnoses.

Why now: An uplifting survival story about a rare condition resonates and is being widely shared as inspiration.

Louisianaheterotaxy syndrome

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