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The Legality of Genetic Privacy in Newborn Screening
Newborn screening programs routinely collect and store babies' genetic material, raising unresolved legal questions about parental consent and the privacy of that data. Debate centres on whether state-run screening systems adequately protect families' genetic information, and who controls the long-term storage and secondary use of blood spot samples taken at birth.
Why now: unclear
Evidence
- The Legality of Genetic Privacy in Newborn Screening · Inside Precision Medicine
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